Patients, patient advocates and citizens will be part of the network governance. The CSA also proposes to co-create the network with cancer researchers trough use cases. The latter are defined as innovative, cross-border, and trans-disciplinary research challenges addressed in a problem-solving approach.
WP1 played a pivotal role overseeing the progress, ensuring timely deliverable submissions and coordinating activities. Regular ExCom meetings, sessions with EU representatives, and a closing event presenting the final blueprint were organised.
In WP2, focus centered on a robust framework to enhance European collaboration in cancer research. This involved appointing European experts, Delphi consensus processes, face-to-face workshops, refining research use cases, and defining eligibility criteria. Efforts aimed to ensure data management aspects and adherence to diversity, inclusivity, and geographical equity principles across Member States.
WP3 conducted a comprehensive landscape analysis covering policy initiatives in diverse areas of cancer research across Europe and cancer-related infrastructures. Online interviews with key infrastructures, coupled with the creation of a Cancer Data Dashboard, provided insights into data availability, accessibility, and interoperability. Workshops focused on establishing the European Federated Cancer Research Data Hub, generating a roadmap that leverages existing infrastructures for collaborative and standardized data sharing.
WP4 concentrated on early integration of patient advocacy groups and citizens. This inclusive approach involved creating informative videos, conducting an online survey to assess cancer research priorities, and developing a toolbox with educational materials. A significant milestone was the successful meeting at the European Parliament in Strasbourg to garner support from Members of Parliament.
WP5 made substantial contributions by defining a governance structure and proposing a budget for UNCAN.eu. Achievements included outlining a stepwise implementation model, evolving the legal framework, describing operating procedures, mapping initiatives supporting cancer research, and developing a budget proposal to ensure the sustainability of UNCAN.eu in the long term.
Finally, in WP6 focused on addressing inequalities in cancer research across regions. Tasks encompassed assessing scientific outputs, exploring twinning partnerships, facilitating technology transfer, and identifying current inequities in various aspects. The outcomes included valuable recommendations to reduce disparities across Member States and contribute to the development of the UNCAN.eu platform, promoting equity without compromising the excellence of cancer research.
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