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Deep uncertainties in bioethics: genetic research, preventive medicine, reproductive decisions

Project description

A new look at difficult decisions in bioethics

Biomedical science has advanced rapidly in recent years. Research progress in the field of genetics and preventive medicine has allowed medical science to play a part in basic life processes. In the face of existing uncertainties and bioethical issues, this raises many questions and provokes emotional responses, but also allows for influences on normative judgements and decisions, like heuristics or biases. The EU-funded BIOUNCERTAINTY project will conduct a new analysis of ethical discussion on biomedical developments. It will research case studies and conduct psychological experiments. BIOUNCERTAINTY will study biases and influences of normative judgements in bioethics, or the processes of separation of misleading and value judgements. The findings will lead to improved practical solutions for the regulation of biomedical research.

Objective

Uncertainty is everywhere, as the saying goes, but rarely considered in ethical reflections. This project aims to reinterpret ethical discussions on current advances in biomedicine: instead of understanding bioethical positions as extensions of classical normative views in ethics (consequentialism, deontologism, contractualism etc.), my project interprets them more accurately as involving various normative approaches to decision making under uncertainty. The following hard cases in bioethics provide the motivation for research:

1) Regulating scientific research under uncertainty about the ontological/moral status (e.g. parthenogenetic stem cells derived from human parthenotes) in the context of meta-reasoning under normative uncertainty.

2) The value of preventive medicine in healthcare (e.g. vaccinations) in the context of decision-making under metaphysical indeterminacy.

3) Population or reproductive decisions (e.g. preimplantation genetic diagnosis) in the context of valuing mere existence.

The main drive behind this project is the rapid progress in biomedical research combined with new kinds of uncertainties. These new and “deep” uncertainties trigger specific forms of emotions and cognitions that influence normative judgments and decisions. The main research questions that will be addressed by conceptual analysis, new psychological experiments, and case studies are the following: how do the heuristics and biases (H&B) documented by behavioral scientists influence the formation of normative judgments in bioethical contexts; how to demarcate between distorted and undistorted value judgments; to what extent is it permissible for individuals or policy makers to yield to H&B. The hypothesis is that many existing bioethical rules, regulations, practices seem to have emerged from unreliable reactions, rather than by means of deliberation on the possible justifications for alternative ways to decide about them under several layers and types of uncertainty.

Fields of science (EuroSciVoc)

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Keywords

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Programme(s)

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Topic(s)

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Funding Scheme

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ERC-STG - Starting Grant

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Call for proposal

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(opens in new window) ERC-2018-STG

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Host institution

UNIWERSYTET JAGIELLONSKI
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 1 499 625,00
Address
UL GOLEBIA 24
31-007 KRAKOW
Poland

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Region
Makroregion południowy Małopolskie Miasto Kraków
Activity type
Higher or Secondary Education Establishments
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Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 1 499 625,00

Beneficiaries (1)

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