Deep uncertainties in bioethics: genetic research, preventive medicine, reproductive decisions

Información del proyecto

BIOUNCERTAINTY

Identificador del acuerdo de subvención: 805498

DOI

10.3030/805498

Fecha de la firma de la CE 29 Octubre 2018

Fecha de inicio 1 Febrero 2019

Fecha de finalización 31 Octubre 2026

Financiado con arreglo a

• EXCELLENT SCIENCE - European Research Council (ERC)

Coste total

€ 1 499 625,00

Aportación de la UE

€ 1 499 625,00

Coordinado por

UNIWERSYTET JAGIELLONSKI
Poland

Periodic Reporting for period 4 - BIOUNCERTAINTY (Deep uncertainties in bioethics: genetic research, preventive medicine, reproductive decisions)

Período documentado: 2023-08-01 hasta 2025-01-31

Resumen del contexto y de los objetivos generales del proyecto

Uncertainty is everywhere, as the saying goes, but rarely considered in ethical reflections. This project aims to reinterpret ethical discussions on current advances in biomedicine: instead of understanding bioethical positions as extensions of classical normative views in ethics (consequentialism, deontologism, contractualism etc.), my project interprets them more accurately as involving various normative approaches to decision making under uncertainty. The following hard cases in bioethics provide the motivation for research:

1) Regulating scientific research under uncertainty about the ontological/moral status (e.g. parthenogenetic stem cells derived from human parthenotes) in the context of meta-reasoning under normative uncertainty.

2) The value of preventive medicine in healthcare (e.g. vaccinations) in the context of decision-making under metaphysical indeterminacy.

3) Population or reproductive decisions (e.g. preimplantation genetic diagnosis) in the context of valuing mere existence.

The main drive behind this project is the rapid progress in biomedical research combined with new kinds of uncertainties. These new and “deep” uncertainties trigger specific forms of emotions and cognitions that influence normative judgments and decisions.

Trabajo realizado desde el comienzo del proyecto hasta el final del período abarcado por el informe y los principales resultados hasta la fecha

The main research topics: normative uncertainty in bioethics; biases and heuristics in ethics and law; conceptual uncertainty; evidential pluralism in biomedicine; personal identity & death, the normative significance of empirical moral psychology; the ethics of categorization and preventive medicine; disagreement and opinion aggregation; consequentialism and the plurality of chances; populism in health care policy.

Avances que van más allá del estado de la técnica e impacto potencial esperado (incluida la repercusión socioeconómica y las implicaciones sociales más amplias del proyecto hasta la fecha)

The main research questions are addressed by conceptual analysis, new psychological experiments, legal case studies, and topic modeling are the following: how do the heuristics and biases (H&B) documented by behavioral scientists influence the formation of normative judgments in bioethical contexts; how to demarcate between distorted and undistorted value judgments; to what extent is it permissible for individuals or policy makers to yield to H&B. The hypothesis is that many existing bioethical rules, regulations, practices seem to have emerged from unreliable reactions, rather than by means of deliberation on the possible justifications for alternative ways to decide about them under several layers and types of uncertainty.

Interdisciplinary Centre for Ethics