Deep uncertainties in bioethics: genetic research, preventive medicine, reproductive decisions

Informazioni relative al progetto

BIOUNCERTAINTY

ID dell’accordo di sovvenzione: 805498

DOI

10.3030/805498

Data della firma CE 29 Ottobre 2018

Data di avvio 1 Febbraio 2019

Data di completamento 31 Ottobre 2026

Finanziato da

• EXCELLENT SCIENCE - European Research Council (ERC)

Costo totale

€ 1 499 625,00

Contributo UE

€ 1 499 625,00

Coordinato da

UNIWERSYTET JAGIELLONSKI
Poland

Periodic Reporting for period 4 - BIOUNCERTAINTY (Deep uncertainties in bioethics: genetic research, preventive medicine, reproductive decisions)

Periodo di rendicontazione: 2023-08-01 al 2025-01-31

Sintesi del contesto e degli obiettivi generali del progetto

Uncertainty is everywhere, as the saying goes, but rarely considered in ethical reflections. This project aims to reinterpret ethical discussions on current advances in biomedicine: instead of understanding bioethical positions as extensions of classical normative views in ethics (consequentialism, deontologism, contractualism etc.), my project interprets them more accurately as involving various normative approaches to decision making under uncertainty. The following hard cases in bioethics provide the motivation for research:

1) Regulating scientific research under uncertainty about the ontological/moral status (e.g. parthenogenetic stem cells derived from human parthenotes) in the context of meta-reasoning under normative uncertainty.

2) The value of preventive medicine in healthcare (e.g. vaccinations) in the context of decision-making under metaphysical indeterminacy.

3) Population or reproductive decisions (e.g. preimplantation genetic diagnosis) in the context of valuing mere existence.

The main drive behind this project is the rapid progress in biomedical research combined with new kinds of uncertainties. These new and “deep” uncertainties trigger specific forms of emotions and cognitions that influence normative judgments and decisions.

Lavoro eseguito dall’inizio del progetto fino alla fine del periodo coperto dalla relazione e principali risultati finora ottenuti

The main research topics: normative uncertainty in bioethics; biases and heuristics in ethics and law; conceptual uncertainty; evidential pluralism in biomedicine; personal identity & death, the normative significance of empirical moral psychology; the ethics of categorization and preventive medicine; disagreement and opinion aggregation; consequentialism and the plurality of chances; populism in health care policy.

Progressi oltre lo stato dell’arte e potenziale impatto previsto (incluso l’impatto socioeconomico e le implicazioni sociali più ampie del progetto fino ad ora)

The main research questions are addressed by conceptual analysis, new psychological experiments, legal case studies, and topic modeling are the following: how do the heuristics and biases (H&B) documented by behavioral scientists influence the formation of normative judgments in bioethical contexts; how to demarcate between distorted and undistorted value judgments; to what extent is it permissible for individuals or policy makers to yield to H&B. The hypothesis is that many existing bioethical rules, regulations, practices seem to have emerged from unreliable reactions, rather than by means of deliberation on the possible justifications for alternative ways to decide about them under several layers and types of uncertainty.

Interdisciplinary Centre for Ethics